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MND Life

54. Up, Up and a Weigh

June was another month of major change in my care regime. I have now moved to a 24-hour care system so there is at least one carer with me at all times, day and night. I was urged by my medical team to move to 24-hour care on leaving hospital in April, but initially I […]

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MND Life

53. I Had A Dream

This month has been very busy with various health-related visitors. As I mentioned in my last (April) blog, I lost quite a lot of strength and mobility during my two weeks in hospital, which I haven’t recovered. As a consequence my OT and Physio have recommended I no longer use the stand-aid hoist, which has […]

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MND Life

52. The Brutality Index

April, for me, started in hospital – my 3rd day there. In similar circumstances, back in August, I was allowed home on day five. This time, a weekend got in the way so it was day six before they started tests to confirm I was well enough to go home. The results showed, instead, that […]

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MND Life

51.Three Score Years and Ten

March brought round two major landmarks. On the 24th, I celebrated my 70th birthday, reaching the biblical ‘three score years and ten’ allocated to man. Three days earlier, was the fourth anniversary of my MND diagnosis. With what I had learned about MND, the prognosis at that time meant that reaching 70 seemed like a […]

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MND Life

50. Golden Curlers

This month sees a major landmark: The 50th edition of my blog. When I first started writing, I never thought it would be for so long. Thank you to all of you who are still reading it, and a special ‘thank you’ to those who have encouraged, and keep encouraging me to continue. I will! […]

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MND Life

49. On Fish And Fishing

In December’s blog, I wrote about our son, Adam’s illness with Covid, and having to self-isolate over Christmas. He is now fully recovered, and came to stay earlier this month. We were able to have a second Christmas Day, with our daughter, Fiona, once again cooking lunch for all the family. We exchanged presents with […]

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MND Life

48. Ashes To Ashes

I was really looking forward to two things in December: Christmas, and the start of the Ashes cricket series between Australia and England. Sadly, a month later, England are 3-0 down in a five match series so the Ashes are already lost. What was worse was the huge margin of defeat in each game. Perhaps […]

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MND Life

47. ‘All my own work!’

November started benignly enough but ended with a bit of a bang. Storm Arwen, which battered the north-east coast in particular, brought freezing weather and our first snow of the year. Fortunately, the snow soon disappeared, but winter is now clearly with us. The month also ended with tighter Covid regulations following fears about the […]

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MND Life

46. Cricket? In Scotland?!

MND research has featured prominently this month. At the end of September, an open letter signed by hundreds of people with MND was handed in to Downing Street. The letter urges the PM to inject £50m into targeted research over five years. The signatories, the youngest being only 21, each wrote a brief message to […]

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MND Life

45.Back to the Tai Chi

September promised to be a bumper month for sport on TV, and so it was, but not with all the results I would have liked. The enthralling cricket test match series between England and India ended in anti-climax when the final match was cancelled due to Covid.  Golf’s Ryder Cup clash ended in a record […]