In earlier blogs, I wrote about some of the physical effects of MND, particularly the continued deterioration in the use of my legs and, more recently, my hands. What I haven’t described is the chronic fatigue and the muscle cramps that also come with MND. Initially, I ascribed the fatigue, like my other early symptoms, […]
In my last blog, I wrote about my intention to go to the local Motor Neurone Disease Association’s bi-monthly meeting in Turners Hill, and I expressed my fears about how I would react to meeting others with MND for the first time. My apprehension was increased by the fact that I had gone alone, as […]
I’d like to start by saying a big ‘thank you’ to all of you who sent messages of support, verbal or written, following my first two blogs. It really has been wonderful to know that so many of you are taking an interest, and care enough to respond. It’s not something I would have thought […]
When I was first diagnosed with MND, I began to read more about it, and came across references to it being ‘a journey’. I didn’t really understand it at the time but I’ve come to appreciate the meaning as I’ve learnt more. MND is quite a rare condition. It affects 1 person in 50,000. At […]
When Mitch asked me to write something about my personal experience of living with Motor Neurone Disease, I started by reflecting back 2 years, before I knew anything about MND, and certainly had no suspicion that it would affect me. I was a fit and active 64 year-old then. I’d recently retired and was playing […]