Categories
MND Life

25. Haggis, neeps & tatties

January saw the end of my participation in the MIROCALS clinical trial, finished with a final visit to Sheffield hospital.  I will not find out whether I’ve been taking the trial medication or a placebo until the final patient completes the programme.  That won’t be until the end of 2020.  The bad news is that […]

Categories
MND Life

24. Old friends & circuit training

Let me start by wishing everyone a Happy New Year. Thank you, all of you, who are still reading my monthly blogs New Year is traditionally a time to look back over the preceding year and, for the first time ever, we can all do so with 2020 vision! The slow physical deterioration caused by […]

Categories
MND Life

23. The Closomat toilet

Medically, November was a relatively routine month for us, but I did visit my GP to follow up the results of my recent Echocardiogram and ECG.  My mild heart murmur, first spotted 10 years ago, is still very mild, and my heart is, otherwise, in excellent condition.  The good news, then, is I’m not going […]

Categories
MND Life

22. An appointment at the beauty parlour?

October began with the delivery of my new electric wheelchair. Trials around the house were soon followed by my maiden outside voyage to the dentist, half a mile distant, and a few days later by my first trip to the pub for lunch.  It certainly makes local excursions much easier for Doreen.  The new chair […]

Categories
MND Life

21. Out to lunch – but what about the toilets?

Good news! September finally saw completion of the sale of our Cuckfield house, a full year after it first went on the market.  It was a relief to see it go, tinged with sadness at the loss of our last physical link with Sussex after nearly 20 years.  But we still have good friends there.  […]

Categories
MND Life

20. The new patio – the saga continues

It has taken until August but, at last, I made it to Trent Bridge, on a gloriously sunny Sunday afternoon, to see a T20 cricket game between Notts and Yorkshire.  It was the same afternoon that Ben Stokes was scoring 135 not out to secure an unlikely win for England v Australia. It soon became […]

Categories
MND Life

19. The new patio – a soap story (part 1)

July provided a wealth of televised sport to watch, particularly World Cup cricket, Wimbledon tennis, and The Open golf. July also saw quite a few MND-related medical visits.  One of these was the re-arranged appointment to measure me up for an electric wheelchair.  I hadn’t expected the opportunity to test drive one, nor to be […]

Categories
MND Life

18. Team wheelchair assembly

‘Flaming June’ is finally living up to its epithet at the very end of the month, but otherwise it has been a pretty awful month, weather wise. Our daughter, Fiona, had a ‘big’ birthday early in the month so we hosted a celebratory family BBQ on 2nd.  It was a showery afternoon, which kept most […]

Categories
MND Life

17. Starting to use a wheelchair

May has always been one of my favourite months.  The golf course comes out of hibernation, with new foliage and blossom on the trees, and trout become more active and can be tempted by a dry fly.  This year, though, I have been largely ‘confined to barracks’, having to content myself with observing the changes […]

Categories
MND Life

16. Falling over & Easter in hospital

April has brought good news and bad news.  On the positive side, we now have a buyer for the house in Cuckfield.  In fact, we had two offers simultaneously.  It’s a bit like the buses I used to use as a student in Newcastle – you wouldn’t see one for ages and then two would […]